Looking for Peer Support - Chronic Kidney Disease

by Mary
(Michigan, USA)

I am looking for peer support from people who have chronic kidney disease.

Last year I was diagnosed with diabetes type 2 and high blood pressure. I was also diagnosed with stage 1 chronic kidney disease.

My name is Mary and I live in Michigan, USA. I am married and have 3 children 2 boys and 1 girl. I will be 39 years old in October!

Mary

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Sep 05, 2013
In Support of Mary
by: Charlene Crosthwaite

I just read your posting.
I too have high blood pressure and type 2 diabetes. I don't have chronic kidney disease though. However, this year was one plagued with kidney issues which started with a kidney mass and a kidney biopsy. The mass turned out to be benign. Thank goodness! For two weeks we worried about the what ifs. It's enough to drive you crazy. I felt fortunate, but it also made me stop and take a look at my life and how I'd been living.
You see over the past seven years we've lost several good friends and relatives. Two of the closest being my Dad and my husband's cousin. Both were diabetics, but his cousin also suffered from chronic kidney disease.
Then in December I had to have shoulder surgery. Thinking...no big deal I'd been through it on my right shoulder...ten weeks later I was back to work. Well not this time! Just months into recovery that surgery, we find out about the mass and then I end up with a kidney blockage!
I'm thankful my children are all grown. Our daughters and granddaughter have been wonderful through this whole mess. I'm finally seeing the light at the end of the tunnel. Have I been down in the dumps during this...Yes!
By reaching out to others, you've already taken steps in a positive direction.
My husband's cousin lived a full life. She was married to her husband for 50 years. She worked a full time job and raised two sons. One of her sons was born with a heart condition. He married and had two children, but died in his 30s. His daughter stood by her grandmother right till the end. GeGe loved life and family. Diabetes tried to rob her of her vision and nearly won, but she fought back. She suffered a massive heart attack before her diabetes was under control and then nursed her husband through his fatal bout with cancer. Never did they think that she would outlive him! But life has a funny way of happening sometimes.
Although you were diagnosed much earlier than she or I were, don't look to the negative...look to the positive.
My problems MADE me really look at what I was doing by not taking more time to take care of myself. I have begun to watch my diet and have actually lost almost twenty-five pounds since May. I still need to lose lots more, but even taking little steps makes a difference. My blood sugars are much better and my blood pressure too. With the issue of the kidney stones, I'll have to modify my diet even more, but I have things I want to do and I plan to be here to do them.
I've seen my brother-in-law beat prostate cancer and my mother breast cancer. I've lived through my grandmother and mother-in-law dealing with Alzheimer's disease and I'm now watching my husband in it's early stages! Still I believe that everything GOOD & BAD happens for a reason.
I also found out this year that some tests, like a CAT scan with contrast can cause your blood sugars to skyrocket.
With diabetes and obesity on the rise, kidney disease is sure to follow if it hasn't already!

Jun 19, 2013
Welcome To This Kidney Forum!
by: Site Admin

A chronic kidney disease diagnosis can be very difficult for some people. There are psychological issues and emotional issues to deal with; there are physical and medical issues... as well as financial issues.

At this time, it is important for you to have the right perspective to effectively deal with this challenge. It is especially important to regulate your blood pressure and blood sugar... Diabetes and high blood pressure are the leading causes of chronic kidney disease. It is also very important to pay special attention to your diet.

Please follow the advice of your doctor.

I hope that many of our visitors will respond to your request for peer support. Having the support of family, friends and those who can personally share in your experience goes a long way. Just knowing that there are others who face the same challenges, and learning from their experiences, provides enormous psychological and emotional support... it makes the burden a bit easier to manage.

Mary, let me take this opportunity to congratulate you for being the first person to make a submission to this kidney forum. On this entire planet, only you can ever claim (or even boast) of being the first to submit an article to this kidney forum. This is a brand new feature of this website that provides a platform for visitors to collaborate, interact and share.

Thank you for taking the time to write and participate in this forum. I trust that you and other visitors will find this forum useful. Hopefully, this will become a place where you can offer and receive help, support and advice.

Please take good care of yourself!

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